Dumb post to the Stargardts Facebook group
Don Raikes
don.raikes at oracle.com
Mon Apr 8 13:07:02 EDT 2013
Hi all,
Just wanted to throw my 2 cents in.
I went blind at the age of 8 years old due to a sinus infection that went untereated.
I went to our state school for the blind for 3rd - 5th grades and was then mainstreamed into the public schools.
Due to religious beliefs my parents never really accepted my blindness, but were supportive of anything I tried.
In highschool I was not only in the top 20 in my class of 600, but marched in the marching band, and was introduced to computers there.
I went to college got my B.S. in management information systems, and have been working in the computer industry since then. I have worked for small companies (3-20 employees) and huge ones (10,000-100,000 employees).
Now at age 52, I am enrolling in a masters program to get my degree in cyber security (pending acceptance of my application).
I have had the good fortune of being able to work from home for the last almost 20 years, although I spent the first 12 years of my work life actually going into the workplace.
I have had to break down a lot of barriers in my 30 years of working. I was one of Oracle's first full-time telecommutor employees, but that has worked well especially since my customer base has been world-wide.
Sure I get frustrated when my screenreader(s) don't cooperate and I can't do my work, but eventually I find a solution and things get back to normal.
Now on to whatever hardware/software challenge lies ahead for me!
-----Original Message-----
From: Bill Cox [mailto:waywardgeek at gmail.com]
Sent: Monday, April 08, 2013 9:05 AM
To: Speakup is a screen review system for Linux.
Subject: Re: Dumb post to the Stargardts Facebook group
At one point I wanted to collaborate with Sina on a book about being blind in the age of technology, where stories like your's and Sinas would make excellent examples throughout the book. Then I got busy at work, and now I'm more busy than ever. I still like the idea, though.
Bill
On Mon, Apr 8, 2013 at 7:17 AM, <acollins at icsmail.net> wrote:
> Hi Bill and all. I think we need to keep in mind that as far as
> blindness is concerned, each of us have different experiences when it
> comes to learning to deal with our blindness. Some of us get lucky,
> and find ourselves in contact with people who can teach us that
> blindness is not the end of the world. Others have a more difficult
> time, and have no one who can help shield them against the terrible
> attitudes that most of the world has concerning blindness. My friend
> Keith Watson was a draftsman engineer, before he slowly began to lose
> his sight. Like Bill, he fortunately ran in to some of us on the
> Speakup list, who could give him advice about what kind of help was
> available, and not allow him to sit around feeling sorry for himself.
> He went back to school, and his company moved him over in to their ip
> department. He has since gone to work for a company monitoring the
> quality of accessible documents they produce for the Social Seccurity Administration.
>
> On the other hand, there are guys like me, who have been blind all my
> life. I went to the local state school for the blind here in Iowa.
> Then because I was just out of high school, and didn't really know
> what I wanted to do with myself, I attended a one year course at our
> state comission for the blind, where I learned a lot of coping skills
> and attitudes that I didn't pick up when I was in school. The upshot
> of it all is that I went to tech school, got a job as a machinest, got
> laid off, went to computer school, and got a job in tech support for
> one of our state universities. I worked as a machinest for ten years,
> and then worked as a tech support consultant for the university for 25 years.
>
> I think it behoves all of us to spread the word that being blind is
> not the end of the world. Is it sometimes difficult? Yes, but so is
> life in general. The glass is either half empty, or half full. Each
> of us gets to decide individually.
>
> Many others here could tell similar stories.
>
> Gene Collins
>
> >I just posted the following to the Stargardts group on Facebook in
> response
> >to a post from a kid who was asked to write about what it's like to
> >go blind, for a publication in Canada. She posted her opening, and
> >asked
> what
> >we thought of it. I found it wanting. She said she could not see
> >the professor's face. This is what I said:
> >
> >For the first two years, I lived in denial. Losing central vision
> >meant losing my job, my house, and the ability to raise my kids. It
> >paralyzed me with fear, and threatened everything I cared about. Yet I was lucky.
> Losing
> >sight meant losing my ability to program, which is the skill that has
> >defined my value to the world. I found a blind mentor who showed me
> >that
> it
> >is possible for the blind to be outstanding programmers. I began to
> >contribute to software for the blind. I worked so hard at improving
> >such software, that I sat too long at my computer and gave myself
> >blood clots, which moved to my lungs and came close to killing me. Still, I was lucky.
> >What is it like to slowly go blind? The world crashes down around you
> >and you fight dragons every day to stay alive. That's if you're
> >lucky, like
> me.
> >For the rest, possibly the majority, I fear it may be far worse. I
> >was lucky in that I had the chance to build something I cared about
> desperately
> >before losing central vision. It gave me the will to overcome the
> >obstacles. What is it like for kids losing vision while going to college?
> >That's what really breaks my heart. They don't yet know what is worth
> >fighting for. Not seeing the professor is no big deal. How many of
> >you people out there with Stargartds have learned speed listening? Do
> >you know the potential you have, and the value of the life you will
> >lose if you don't fight for it? I'm lucky, because I got to build
> >that life before losing vision. I grieve for all the kids who will
> >never get the chance to know why they should fight so hard.
> >
> >I don't think any of the kids out there with Stargardt's will
> >suddenly change their lives because of my post, but you guys, and
> >especially Sina, have changed my life. Thanks for showing me that my
> >central vision impairment need not cripple me, and for the chance to
> >help write the software I need. I am using Speech Hub, Mary TTS, and
> >NVDA just to write this email. Working together, we can build great
> >tools like Speech Hub, and great organizations like the Accessible
> >Computing Foundation. We can make a difference one vision impaired
> >guy at a time, or at least try like Hell.
> >Bill
> >_______________________________________________
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> >Speakup at linux-speakup.org
> >http://linux-speakup.org/cgi-bin/mailman/listinfo/speakup
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>
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